I had quite a rough day yesterday, while at the hospital. We were running tests for Epilepsy, so we could rule that out before diagnosing Narcolepsy. The results as expected showed no evidence of Epilepsy, however I wasn't able to get a diagnosis, even though I've been placed on Modafinil, until I see a Neurologist.
The consultant said I most certainly have Narcolepsy, and should stop driving, and he said the Neurologist will most likely say the same thing, but because I was in the wrong clinic, he would not diagnose me with Narcolepsy. I almost feinted out of shear anger at the situation. I said so "if it's not Narcolepsy what is it", and he said "no I think it's narcolepsy, but I'm not an expert".
This is how we roll in England, it might be free but the NHS don't half crap on you at times! Why couldn't he give the diagnosis? He's upped my Modafinil to 200mg, the leaflet says "this medication is used to treat Narcolepsy", I have major symptoms of Narcolpesy without Cataplexy, or maybe I.Hypersomnia, but it's closer to Narcolepsy in that the attacks sometimes are random and linked to how I feel. How many times can the N word be mentioned but no diagnosis given?
Another blog post in itself, I'll run soon is, blogging about it makes me angry, which makes me sleepy and when I have a heated conversation about it at work I also glaze over and go dizzy.
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