It has taken a while to adjust to not having to wake up to attend a 9am start for work, my body is still waking at 6am and I think I managed to figure out why. It's not just that I was having to get up for work at 6am (and thus ending up shattered 3 hours later upon arriving at 9am), I was also taking my thyroid medication around that time.
Levothyroxine works best on an empty stomach, so it was always advised to take it as early as possible, before breakfast. Since I've refused my thyroid this and instead moved it to 10am I'm finding that I'm sleeping better through the night. Though I'm still finding that I can't sleep before 1am and would benefit I think from a sedative. But certainly sorting out this 6am wake up nonsense has helped me get more than 4 hours sleep a night.
I'm planning a big post on Caffeine because I believe that's the stimulent that I'm relying on to manage my condition and what it does mean is that at night it won't let me slow down enough to sleep. But I can't really win, without Caffeine, I bearely make it through the day and with too much I overshoot and the next day is EVEN worse leading to a fatigue cycle and dependance issue.
My EDS attacks are moving around the "envrionmental" clock too 1pm instead of 11am, 4pm instead of 3pm, and it varies day to day. So it's becoming a lot harder for me to predict and thus plan my day around when I'll be having my sleep attacks. At least when I was in work I knew that a rigid routine allowed me to contain my naps to strict times. If I want a sleep attack at 3pm instead of 4pm (and it's gonna happen so I want it to happen at a convienient time), I'm going to back to backtrack and choose to force myself to wake up at 9am (my new 6am) so it's all back in line with a nice predictable 3 hour cycle.
Self employment I feel is going to offer significant challenges to regulating my condition, my schedule will naturally become more anti-social, but in the same breath it will also remove the ill judgement that was placed upon me due to my condition by the demands of presenteeism. However if I'm having a really bad week, I risk not being able to work. As long as I can keep a roof over my head, that's my biggest worry from loosing my job due to what is obviously a sleep disorder called Narcolepsy.
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