Sleep Apnea without any Apnea's?

Well after SIX years of this s**t ... when I moved to America the existence of Narcolepsy was shut down. As was my reasonable ask for a prescription refill.

Let's take a look at your AHI I was told, (which was classed as an error in the UK). This I fought because I had a diagnosis of Narcolepsy and was being treated for it for 5 years! Nope it could not possibly be Narcolepsy I was told, I was told in a room full of CPAP machines to try it at least.  Conclusion, with an AHI of 10.1 (down from 31 with no treatment) ... Diagnosis = mild sleep apnea. CPAP failed, horribly ... most likely because I have an upper airway resistance and not a complete blockage. Sure this may progress into apnea but I had 1 apnea the whole night of a sleep test done last year.

HYPOPNEA!! The H in AHI ... Damn Hypopnea, not Apnea.

I'm not overweight, I don't have apneas, I'm young with a history of asthma in childhood; but a year on from the OSA awakening I am recovering from a Tonsillectomy and correction of my severely deviated septum. I had breathing restrictions with no significant oxygen desaturations, they were called RERA's. I researched, found UARS (Upper Airway Resistance Syndrome), my consultant refused to accept UARS as a term, she wanted to advance my jaw forwards and called it 'severe' sleep apnea with an AHI of 10.1 ... I fought back against this lie and the need for such radical surgery as breaking my jaw for a mild case of OSA and was banned from the clinic as a patient as a result.

So with a diagnosis of mild sleep apnea (AHI 10.1 ... HI = 8!!) and a new hospital entirely, we progressed towards surgery to clear out some space in my airways and I'm hoping that my AHI will come below 5 which will be a cure! If I get an AHI 4.5 this whole mess will be cleared up and I can DRIVE again!!

It has been an awful journey, but I am with a physician now who will listen to me and not try to push CPAP. I can breathe so much better now my nasal passages have been widened. A simple deviated septum!! Who knew?