Well, I've had the weekend to recover from not sleeping well during the overnight tests, my sleep paterns still aren't back to normal. The two night EEG was horrible, with all those wires superglued onto my skull, the glue felt like deep heat and the wires kept tugging my head everytime I moved.
The staff were lovely and worked in shifts, we were always well fed and warm, I shared a room with another person undergoing sleep tests. In general comfortable enough but very un-nerving as CCTV cameras watched us for the entire time and I could hear the whiring of the camera as I moved around from bed to loo.
I've managed to get all the superglue out of my hair now, but am refraining from getting a hair cut as I have to go through it all again this Thursday for my Multiple Sleep Latency Test (MSLT).
On returning home after these tests I had a letter from the DVLA saying that they had come to a decision about my driving license and that it is to be revoked. I had three days notice and have since taxed the car off road! For the time being it hasn't really affected me to know that I can't drive at all for the foreseeable future, because I'm so pre-occupied with getting the diagnosis and evidence together for the Employment and Support Tribunal.
With the cold weather we are having in the UK at the moment, bed seems to be the best place to be under cover in the warm and with flickring candles and christmas tree lights to keep my spirits up. It's getting closer to being real this whole Narcolepsy thing.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment